The Latest CDC/ Autism/ Vaccine Storm Examined Part II -Statistics and Facts.

I promised to provide sources, statistics, researchers, advocates, supporters, history and relevant information with regards to the Vaccine/Autism/CDC scandals,vaccine safety and support.

I am relying on the most reputable and indesputable sources for this article. They are listed below. I al also including the Vaccine Scedule in this piece as set forth by the CDC.

My summary is my own thoughts about mending the broken relationships resulting from this passionate, deadly war and moving forward.

Only through correct information can we make informed decisions.~C.A. Curie’

Autism with or without vaccines.

Autism with or without vaccines.

Before we debate or weigh risk factors, we owe it to ourselves and our children to make educated and informed decisions.

**Autism is present in children who do not have vaccines.**

We need to look further into the role of vaccines, the damage of the ‘anti’vaccine’ movement and the the impact of both.

There are three key questions involved.

First question. Do Vaccines Work?

This show of  Illustrated Timelines is paramount in getting the correct information. We can graphically see the decrease of dangerous and fatal diseases through the science and widespread use of vaccines and the consequent spike in diseases following the denial of them..

The first Timeline in each section shows the decrease in diseases prior to the ‘anti’vaccine’ scandal. The second timeline in each group demonstates the undeniable deluge of diseases following the Wakefield/McCarthy ‘anti-vaccine’ get rich campaign.

TIMELINES OF VACCINE PREVENTABLE ILLNESSES

AUTISM SPECTRUM DISORDER PREVALENCE:

 

The Autism and Developmental Disabilities Monitoring Network was created in 2000 by the CDC in order to get more accurate Autism Spectrum Disorder prevalence statistics than were previously possible.

 

The national prevalence statistics are an average of the local prevalence statistics.

 

2000: 6 States Monitored: Arizona, Georgia, Maryland, New Jersey, South Carolina, West Virginia.  Average ASD prevalence across all six sites was 6.7 per 1,000 children aged 8 years.

 

2002: 14 States Monitored: Alabama, Arizona, Arkansas, Colorado, Georgia, Maryland, Missouri, New Jersey, North Carolina, Pennsylvania, South Carolina, Utah, West Virginia, Wisconsin.  Average ASD prevalence across all fourteen sites was 6.6 per 1,000 children aged 8 years.

 

2006: 11 States Monitored: Alabama, Arizona, Colorado, Florida, Georgia, Maryland, Missouri, North Carolina, Pennsylvania, South Carolina, Wisconsin.  Average ASD prevalence across all eleven sites was 9.0 per 1,000 children aged 8 years.

 

2008: 14 States Monitored: Alabama, Arizona, Arkansas, Colorado, Florida, Maryland, Missouri, New Jersey, North Carolina, Pennsylvania, South Carolina, Utah, West Virginia, Wisconsin. Average ASD Prevalence across all fourteen sites was 11.3 per 1,000 children aged 8 years.

 

MEASLES:

 

 

1963: Measles Vaccine Licensed

1971: Measles, Mumps, Rubella Vaccine Licensed

1998: Andrew Wakefield Published Study Falsely Linking Vaccines To Autism

1999: Thimerosal Removed From Most Vaccines

2007: Increase In United States Anti-Vaccination Rhetoric

2010: Andrew Wakefield’s 1998 Study Was Retracted And His Medical License Was Revoked

 

MUMPS:

 

 

1971: Measles, Mumps, Rubella Vaccine Licensed

1998: Andrew Wakefield Published Study Falsely Linking Vaccines To Autism

1999: Thimerosal Removed From Most Vaccines

2007: Increase In United States Anti-Vaccination Rhetoric

2010: Andrew Wakefield’s 1998 Study Was Retracted And His Medical License Was Revoked

 

 

RUBELLA:

 

 

1971: Measles, Mumps, Rubella Vaccine Licensed

1998: Andrew Wakefield Published Study Falsely Linking Vaccines To Autism

1999: Thimerosal Removed From Most Vaccines

2007: Increase In United States Anti-Vaccination Rhetoric

2010: Andrew Wakefield’s 1998 Study Was Retracted And His Medical License Was Revoked

 

 

DIPHTHERIA:

 

1921: Diphtheria Vaccine Licensed

1947: Combined Tetanus and Diphtheria Vaccine Licensed

1949: Combined Diphtheria, Tetanus and Pertussis Vaccine Licensed

1998: Andrew Wakefield Published Study Falsely Linking Vaccines To Autism

1999: Thimerosal Removed From Most Vaccines

2007: Increase In United States Anti-Vaccination Rhetoric

2010: Andrew Wakefield’s 1998 Study Was Retracted And His Medical License Was Revoked

 

 

TETANUS:

 

1924: Tetanus Vaccine Licensed

1947: Combined Tetanus and Diphtheria Vaccine Licensed

1949: Combined Diphtheria, Tetanus and Pertussis Vaccine Licensed

1998: Andrew Wakefield Published Study Falsely Linking Vaccines To Autism

1999: Thimerosal Removed From Most Vaccines

2007: Increase In United States Anti-Vaccination Rhetoric

2010: Andrew Wakefield’s 1998 Study Was Retracted And His Medical License Was Revoked

 

 

PERTUSSIS (WHOOPING COUGH):

 

 

1949: Combined Diphtheria, Tetanus and Pertussis Vaccine Licensed

1996: Pertussis Vaccine Licensed

1998: Andrew Wakefield Published Study Falsely Linking Vaccines To Autism

1999: Thimerosal Removed From Most Vaccines

2007: Increase In United States Anti-Vaccination Rhetoric

2010: Andrew Wakefield’s 1998 Study Was Retracted And His Medical License Was Revoked

 

 

HAEMOPHILUS INFLUENZAE SEROTYPE B (HIB):

 

 

1990: HIB Vaccine Licensed

1998: Andrew Wakefield Published Study Falsely Linking Vaccines To Autism

1999: Thimerosal Removed From Most Vaccines

2007: Increase In United States Anti-Vaccination Rhetoric

2010: Andrew Wakefield’s 1998 Study Was Retracted And His Medical License Was Revoked

 

 

HEPATITIS A:

 

 

1995: Hepatitis A Vaccine Licensed

1998: Andrew Wakefield Published Study Falsely Linking Vaccines To Autism

1999: Thimerosal Removed From Most Vaccines

2007: Increase In United States Anti-Vaccination Rhetoric

2010: Andrew Wakefield’s 1998 Study Was Retracted And His Medical License Was Revoked

 

 

HEPATITIS B:

 

 

1982: Hepatitis B Vaccine Licensed

1991: Hepatitis B Vaccine Recommended For All Infants

1998: Andrew Wakefield Published Study Falsely Linking Vaccines To Autism

1999: Thimerosal Removed From Most Vaccines

2007: Increase In United States Anti-Vaccination Rhetoric

2010: Andrew Wakefield’s 1998 Study Was Retracted And His Medical License Was Revoked

 

 

INFLUENZA-ASSOCIATED PEDIATRIC MORTALITY:

 

 

1998: Andrew Wakefield Published Study Falsely Linking Vaccines To Autism

1999: Thimerosal Removed From Most Vaccines

2003: Influenza Vaccine Licensed For Use In 5-49 Year Old Persons

2004: Influenza Vaccine Licensed For Use In Children 6-23 Months Of Age

2007: Increase In United States Anti-Vaccination Rhetoric

2010: Andrew Wakefield’s 1998 Study Was Retracted And His Medical License Was Revoked

 

 

MENINGOCOCCAL DISEASE:

 

 

1981: Meningococcal Disease A, C, Y, & W-135 Vaccine Licensed

1998: Andrew Wakefield Published Study Falsely Linking Vaccines To Autism

1999: Thimerosal Removed From Most Vaccines

2007: Increase In United States Anti-Vaccination Rhetoric

2010: Andrew Wakefield’s 1998 Study Was Retracted And His Medical License Was Revoked

 

 

POLIO:

 

 

1955: Inactivated Polio Vaccine Licensed

1961: Monovalent Oral Polio Vaccine Licensed

1963: Trivalent Oral Polio Vaccine Licensed

1998: Andrew Wakefield Published Study Falsely Linking Vaccines To Autism

1999: Thimerosal Removed From Most Vaccines

2007: Increase In United States Anti-Vaccination Rhetoric

2010: Andrew Wakefield’s 1998 Study Was Retracted And His Medical License Was Revoked

 

 

VARICELLA (CHICKENPOX):

 

 

1995: Varicella Vaccine Licensed

1998: Andrew Wakefield Published Study Falsely Linking Vaccines To Autism

1999: Thimerosal Removed From Most Vaccines

2007: Increase In United States Anti-Vaccination Rhetoric

2010: Andrew Wakefield’s 1998 Study Was Retracted And His Medical License Was Revoked

 

SOURCES:

Prevalence of Autism Spectrum Disorders — Autism and Developmental Disabilities Monitoring Network, Six Sites, United States, 2000

Prevalence of Autism Spectrum Disorders — Autism and Developmental Disabilities Monitoring Network, 14 Sites, United States, 2002

Prevalence of Autism Spectrum Disorders — Autism and Developmental Disabilities Monitoring Network, United States, 2006

Prevalence of Autism Spectrum Disorders — Autism and Developmental Disabilities Monitoring Network, 14 Sites, United States, 2008

CDC Summary of Notifiable Diseases, United States, 1944-1953

CDC Summary of Notifiable Diseases, United States, 1954-1963

CDC Summary of Notifiable Diseases, United States, 1964-1973

CDC Summary of Notifiable Diseases, United States, 1974-1983

CDC Summary of Notifiable Diseases, United States, 1984-1993

CDC Summary of Notifiable Diseases, United States, 1990-1997

CDC Summary of Notifiable Diseases, United States, 1998

CDC Summary of Notifiable Diseases, United States, 1999

CDC Summary of Notifiable Diseases, United States, 2000

CDC Summary of Notifiable Diseases, United States, 2001

CDC Summary of Notifiable Diseases, United States, 2002

CDC Summary of Notifiable Diseases, United States, 2003

CDC Summary of Notifiable Diseases, United States, 2004

CDC Summary of Notifiable Diseases, United States, 2005

CDC Summary of Notifiable Diseases, United States, 2006

CDC Summary of Notifiable Diseases, United States, 2007

CDC Summary of Notifiable Diseases, United States, 2008

CDC Summary of Notifiable Diseases, United States, 2009

CDC Final 2010 Reports of Nationally Notifiable Infectious Diseases

CDC Final 2011 Reports of Nationally Notifiable Infectious Diseases

CDC Final 2012 Reports of Nationally Notifiable Infectious Diseases

IAC Historic Dates and Events Related to Vaccines and Immunization

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The Latest CDC/ Autism/ Vaccine Storm Examined Part I

The NEWEST Vaccine/CDC/Autism conspiracy theory hit YouTube and the media this week. Of course it went viral.

Conspirators copy each others videos.

Conspirators copy each others videos.

Please note from the upload times in the picture on the right that one merely copied the other. It is old news that conspiracy fame hounds blindly copy each other without checking facts or sources.

**If Man C jumps off the cliff, will Man B and Man A follow? Exactly three hours apart.**

My son is 7 1/2 years old and was diagnosed at 2 as severely Autistic. Three weeks ago we both got our yearly Flu vaccines.

Since he got his, he began to do Physics and has continued to excel in all other areas, academically, therapeutically, emotionally, physically and mentally.. Additionally he is now protected from 3 potentially deadly virus, (viruses or virii), thanks to the latest CDC Flu vaccination. I have Asperger’s and am likewise protected. I also have no harmful effects from the shot.

http://jennymccarthybodycount.com

http://jennymccarthybodycount.com

Jenny McCarthy declared menace by CDC, Board of Pediatrics and Canadian Health Dept.

Jenny McCarthy declared menace by CDC, Board of Pediatrics and Canadian Health Dept.

Since 2007 millions of children have been denied life saving vaccines. Autism has more than tripled in this time span equally affecting vaccinated and non-vaccinated children.

We also need to use common sense. Autism has disproportionately affected boys over girls 12 to 1 yet vaccines are administered equally. Prior to 2007, the US had gone 12 years without a single reported case of the measles. Everything has changed.

 

Andrew Wakefield busted for falsifying and concealing study results.

Andrew Wakefield busted for falsifying and concealing study results.

Since the onslaught of the Jenny McCarthy/ Andrew Wakefield scandal in 2007, 128,044 children have become dangerously ill from vaccine preventable illnesses and 1,336 have died.

To date, McCarthy and Wakefield have made no apologies.

 

 Not one case of Autism has been linked to vaccines.

Bill gates. Genius. Humanitarian. Autistic.

Bill gates. Genius. Humanitarian. Autistic.

 

My next post will contain the most recent legal, medical and authoritative information on vaccines including all sources.

If we can wrap our brains around the fact that at least 1 in 30 children globally are affected by Autism, then we can also see how easily thousands of similarities will exist amongst children and parents.

The Autism ‘Cause of the Day’ theme is not only a billion dollar industry, it is both dangerous and deadly. They are tearing us apart because our children are our lives.

Autism's effect on the child's world is critical Dezi

Autism’s effect on the child’s world is critical
Dezi

Why are we continuing this destructive, detrimental and malicious campaign which purports that Autism is a negative diagnosis in the first place?

 

If the same groups spent the same time and money learning and applying therapy, the results would have proven Autism to be the positive diagnosis that it is!.

 

The confusion, frustration and fear I initially felt has turned into days filled with miracles, amazement, love and happiness.

My son doesn’t see Autism. He sees the effects on the world around him.

 

Lawsuits don't treat Autism.  Fix first fight later. Dezi

Lawsuits don’t treat Autism. Fix first fight later. Dezi

 

Why not fix first and save the fights for later? The parents who do the work and become a positive, informed, productive supports in this remarkable journey not only experience the huge changes but typically lose the anger and need to blame or lash out.

 

The more you are upset the more your child believes something is terribly wrong with him!

You cannot get to the right by holding on to the wrong.

 

Autism Family The Vaccine/CDC/Autism Storm

Autism Family The Vaccine/CDC/Autism Storm

 

Remember, the window of greatest therapy impact is before the age of 5. After that, it can take 15 years to do what should have been done in one. Don’t waste this time.

 Every distraction from critical one on one Early Intervention therapy is a tragedy.

I have forgone many nights of sleep to research and report the detrimental actions and dangers of those who knowingly using false information to gain fame and fortune at the sake of our children’s futures and lives.

Dezi and Mommy AD (After Diagnosis). The healing begins.

Dezi and Mommy AD (After Diagnosis). The healing begins.

I hold on to the belief that if even one child or family can be changed for the better it is all worthwhile.

In this latest ‘scandal’ where alleged ‘new information’ has come forward, I needed to immediately address the issue before further damage is done.

Emily Willingham Contributor FORBES

Emily Willingham
Contributor FORBES

In doing my own extensive and relentless research I fortunately stumbled upon a brilliant writer/researcher/scientist who contributes regularly to the well respected FORBES Magazine, Emily Willingham. She is also the founder of http://www.doublexscience.org/, and her contributions have appeared in The New York Times, Grist, Slate and Scientific American to name a few. Ms. Willingham is credited for the following article entitled, ‘Is The CDC Hiding Data About Mercury, Vaccines and Autism?’.

Simon 'Be original, be better or be gone' Cowell

Simon ‘Be original, be better or be gone’ Cowell

 

I immediately realized there was no need to re-invent the wheel by spinning her article. Quite frankly, as Simon Cowell says, “Be original, be better or be gone.”

 

(Conspiracy YouTubers: Men A, B and C would not be going to Vegas, baby.)

Most importantly, there’s no need to take unnecessary precious time away from my son.

The following piece is already well sourced, brilliantly expressed and on point. I give full acknowledgment and credit to Emily Willingham and have added her bio and links at the conclusion of her article published in Forbes Magazine February 22, 2014.

***************************************

2/22/2014 @ 3:40PM |24,780 views

Is The CDC Hiding Data About Mercury, Vaccines, And Autism?

You know the rule. The answer is, “No.” But the assertion has gone viral on social media thanks to the zombie-like resurrection of a long-told, oft-debunked story that the US Centers for Disease Control (CDC) is hiding its own data linking autism and mercury in vaccines. If you see such assertions in your timelines and newsfeeds (sample headline: “CDC Caught Hiding Data Showing Mercury in Vaccines Linked to Autism”), send the disseminators here. Why? Read on.

In 1999, four authors affiliated with the CDC presented an abstract at a conference … a CDC conference for fellows of its Epidemic Intelligence Service (EIS). The EIS, by the way, serves as the Interpol of infectious disease, tracking down elusive perpetrators worldwide and stopping them before they can harm again. In other words, they are people who dedicate their lives to saving lives. Every year, the program also sponsors a conference. And 1999 was no exception.

In 1999, one Thomas Verstraeten and three colleagues submitted an abstract for the EIS conference, presenting results from the early stages of a two-phase study*. It was preliminary, as many, many such submitted abstracts are. They indicated ‘no strong preference for a poster presentation’, which means that they were OK with getting up in front of the conference attendees and discussing their findings on the record. The zombie-like story making the rounds would have you believe that submitting the abstract “required the approval of top CDC officials prior to its presentation at the Epidemic Intelligence Service (EIS) conference,” but all conference abstracts require approval from the people running the conference–which, in this case, was the CDC.

The authors reported using raw data from the Vaccine Safety Datalink and HMOs in the Pacific northwest to identify mathematical relationships between thimerosal-containing vaccines and developing neurological and renal impairment (thimerosal is a preservative that contains ethylmercury and prevents dangerous contamination of large volumes of vaccine. It currently is present in multidose vials of flu vaccine). In their comparison of what they call the “highest exposure group” to an “unexposed group,” they reported an increased risk for nondegenerative neurological disorders.

Conference abstracts and the accompanying data are almost always preliminary. In fact, the likelihood that conference material and what finally appears in a peer-reviewed journal will differ is quite high. Much conference material never appears in a full, peer-reviewed article at all because completion of the study yields the much-dreaded “negative results.”

The year of the EIS conference, 1999, was a turning point for thimerosal in vaccines. And then in 2000, the Simpsonwood Conference took place, an assemblage of experts from inside and outside the CDC to discuss the thimerosal issue. The entire transcript of that conference is available here. Verstraeten was in attendance and presented on the data related to the not-even-remotely concealed results from his two-phase study. One thing he noted–and this issue probably is one of many that drives differences between a conference abstract and a final publication–was variability related to the HMOs gathering the data. Those differences mattered to the outcomes and had nothing to do with thimerosal.

In his presentation at the Simpsonwood conference, Verstraeten noted,

This is the result for autism, in which we don’t see much of a trend except for a slight, but not significant, increase for the highest exposure. The overall test for trend is statistically not significant.

Later in the presentation, we learn that phase I of the study looked only at raw numbers from a database while phase II involved chart examination to confirm diagnoses and added in an HMO. The second phase involved new data following on the study described in the 1999 abstract.  This chart review matters. As one of the other authors on the 1999 abstract notes in the Simpsonwood presentation:

Now with autism, if we limit it to children with exposure at either one month or three months of age… there is a relative risk that is no different than one and that is replicated whether we limit it to children with a diagnosis mentioned in the chart where the child was referred to a specialist, or the child was confirmed by a specialist.

In other words, the chart review refined the original raw data and effaced any finding of increased risk. ETA: If you’re feeling wonkish, writer Lindsay Beyerstein elaborated at length in 2005 on the Simpsonwood conference and the limitations of the presented study.

In spite of the openness of this process and the adherence to an original two-phase plan for the study, Verstraeten found himself (and continues to find himself, it seems) the target of accusations of manipulating or hiding data, particularly when the peer-reviewed paper from this study was published in 2003 (abstract here). His having gone to work for “Big Pharma”–in this case,GlaxoSmithKline GSK +0.93%–following completion of his appointment at the CDC brought further accusations of complicity in a coverup. Indeed, the accusations were so hot that Verstraeten responded to them in a 2004 commentary published in Pediatrics, recounting the history. Bottom line was, he was a foreign citizen whose fellowship with the CDC was ending, and he sought and obtained employment in his home country, in his field.

In his 2004 commentary (which is behind a paywall), Verstraeten says, “Did the CDC water down the original results? It did not.”

He goes on to write

The CDC screening study of thimerosal-containing vaccines was perceived at first as a positive study that found an association between thimerosal and some neurodevelopmental outcomes. This was the perception both independent scientists and antivaccine lobbyists had at the conclusion of the first phase of the study. It was foreseen from the very start that any positive outcome would lead to a second phase.

In other words, when you dig into raw numbers and find some mathematical relationships, then you have a reason to move to the second planned phase of examining the charts. If you don’t find anything, phase II is a non-starter.

He then notes

Because the findings of the first phase were not replicated in the second phase, the perception of the study changed from a positive to a neutral study. Surprisingly, however, the study is being interpreted now as negative by many, including the antivaccine lobbyists. The article does not state that we found evidence against an association, as a negative study would. It does state, on the contrary, that additional study is recommended, which is the conclusion to which a neutral study must come.

Perhaps you don’t want to take Verstraeten’s word for it because he went to work for Big Pharma. Those who oppose vaccines often rely on the US Congress, for better or for worse, to make their arguments. So, here’s a link to the findings of the Senate Committee on Health, Education, Labor and Pensions from their 2007 investigation into allegations that the CDC used Simpsonwood to cover up a thimerosal-autism link and that Verstraeten manipulated data.

Here’s what the Senate committee concluded regarding allegations against Verstraeten:

Allegation # 2: The Centers for Disease Control (CDC) convened the Simpsonwood Conference to cover up the finding that thimerosal causes autism.
Findings: The allegation is not substantiated. … Instead of hiding the data or restricting access to it, CDC distributed it, often to individuals who had never seen it before, and solicited outside opinion regarding how to interpret it. The transcript of these discussions was made available to the public. The data was also discussed at the Advisory Committee on Immunization Practices, a public forum held on June 21 and 22, 2000. Simpsonwood participants generally agreed that the VSD data set was weak, it was difficult to assess causality, and further study and investigation were warranted.

Not exactly the behavior of government scientists bent on a cover-up.

The committee also found that

Allegation # 3: Dr. Thomas Verstraeten, MD, MSc, was pressured into changing his research position regarding a causal link between thimerosal and autism.
Finding: The allegation is not substantiated. … HELP Committee staff interviewed Dr. Verstraeten with regard to his findings and his participation in the Simpsonwood Conference. …Review of the phases of Dr. Verstraeten’s study, “Safety of Thimerosal-Containing Vaccines: A Two-Phased Study of Computerized Health Maintenance Organization Databases,” and examination of his voluntary response to Committee questions during his interview reflect that his intention was always to conduct a two-phase study. … there is no evidence that GlaxoSmithKline hired Dr. Verstraeten for the purpose of pressuring him to manipulate his data on a causal link between thimerosal and autism. … Dr. Verstraeten was working in the United States at CDC on a temporary visa. Near the completion of his tenure with CDC, he began searching for employment in his native country and found employment with GlaxoSmithKline where he continues to be employed.

In spite of the neutral findings from Verstraeten’s study, the US Public Health Service (USPHS) and the American Academy of Pediatrics (AAP) jointly recommended in 1999 that thimerosal should be phased out of use in the handful of childhood vaccines that included it. In the wake of considerable further study showing no link between thimerosal and developmental disorders, that recommendation was retired in 2002. Now, say AAP doctors in a 2012 commentary:

Had the AAP (and, we suspect, the USPHS) known what research has revealed in the intervening 14 years, it is inconceivable to us that these organizations would have made the joint statement of July 7, 1999. The World Health Organization recommendation to delete the ban on thimerosal must be heeded or it will cause tremendous damage to current programs to protect all children from death and disability caused by vaccine-preventable diseases.

*phrase added for clarity. I also refer readers to this comment offering some more information about resources discussing the 1999 abstract and the Simpsonwood conference, etc.

                                              *****************************************

Emily Willingham Contributor FORBES

Emily Willingham
Contributor FORBES

Scientist, writer, editor. Founder of http://www.doublexscience.org/. Work has appeared at Slate, Scientific American, Grist, and The New York Times, among others. I focus on how science filters to consumers and how consumers make decisions about science. Frequent honorable mentions: autism, parenting, and the news media.

The author is a Forbes contributor. The opinions expressed are those of the writer.

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I offer my thanks, admiration and respect to Emily Willingham for her work. I am thrilled to find a well researched, globally respected scientist and admirable writer so dedicated to Autism.  I love her quote, “I write about the science they’re selling you.”  I’m a fan!

Emily Willingham’s contributions include many other in depth, factual and relevant articles about Autism. I will post her links below for everyone and look forward to following her continued research and contributions. We definitely need more Emilys.

To the copy-kat, stick stirring conspirators, I offer the following heartfelt illustration:

Bull*&*$%*(

Bull*&*$%*(

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I hope this helps to clear up the newest attempt to throw our precious time under the bus with a topic that’s as old and dead as Secretariat.

P.E.A.C.E. Parents Everywhere of Autistic Children Empowered

Thank you for reading.

Share+Care=Aware. ~C.A. Curie’

Autism Battle

Autism Battle

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AUTISM. Supreme Court, vaccines and YOU.

AUTISM. Stop making Excuses.

The recent decision by the Supreme Court only magnifies an even bigger problem for the children with ASD. Parents are spending precious time and money on outside forces while the home therapies needed to treat ASD are being pushed aside. No matter how well informed or well meaning any campaign is, there is nothing more important than your personal obligations you owe to your child.

You, the parent or caregiver cannot rest solely upon the advice of anyone. Though you may not be an Autism, (ASD), expert, you already are, (or will quickly be), your child’s expert.

From seeking out private therapists to advocating in the schools and governments, your research and preparedness will shape your child’s life. Don’t find yourself later blaming others or having regrets because you did not choose the correct battles. You will lose your child’s war.

You don’t have to accept an insufficient Individualized Education Program, (IEP). If you do not see results or feel as though your child’s needs are not being accommodated, call meetings, bring in advocates, present your own research, show successful comparatives, or just transfer to another district. If your school district does not allow for that, you have one more choice.

Moving was, is, and will always be an invaluable option. The probability that your child with ASD is high functioning and will need the supports and resources to accommodate this diagnosis suggests that you will need to do EVERYTHING. Getting him into appropriate school systems and programs should be your primary objective. Hanging onto a job or mortgage when your child’s quality of life will ultimately suffer, long after you are gone, is unforgiveable.

Possessions can be bought again and there are jobs everywhere for those who want to work. This is the great United States of America. There are programs to ensure that no one will starve or be without as long as you strive and are willing to make sacrifices. I personally went from a rather lavish life and existence down to what may outwardly be seen as the bare minimums.

Truthfully, I am extremely rich in my life and heart now having seen what would have been considered ‘severe’ ASD turn completely around into high functioning, ‘mild’ ASD in my own son. I use those terms loosely as per a Pediatric Neurologist, they are not an actual diagnosis.

If your child was recently diagnosed, remember that it is critical to get them into an ABA, (Applied Behavior Analysis), program by the age of 3 if possible, but certainly you must have done this step by the age of 4. The percentages of lower functioning children with ASD in the 42 states that do not provide is staggering. In reality, that percentage should be no higher than 15%.

I urge all parents to understand that no matter what the title or degree or even well meaning of anyone you trust with regards to ASD, you must do your own homework. The vaccine and diet myths have clearly shown that we are dealing with ASD like herds of sheep by following without careful research and common sense. We must ask ourselves, what was in place for the autistics that have already grown into functional and outstanding adults? One on one moms/ caregivers and home based behavioral modifications. Moms are notorious for explaining what they expect then praising positive behaviors and actions. Add in ‘routines,’  learn through play and common sense and you are already on the right path!

Do not expect any fad or outside program to replace your therapy responsibilities in the home. In the majority of cases, ASD can be turned around. I know it’s hard to believe. I even distrusted. My thoughts turned to, “We have everything to gain and my son had everything to lose,” if I didn’t try.

My heart cries for the families who have spent years of precious time and money filling out statements, paying attorneys, (who were all too willing to take your money), acquiring depositions, testifying and campaigning or lobbying for issues which are now debunked, and quite possibly served as detrimental to your child. (Failure to immunize).

Where was your child during all of this?

The possessions, people and world I left behind in order to get help pale in comparison to the miraculous and wonderful life I now lead. I am watching my former speechless, head banging, wall staring child now sing, dance, spell, read, count, play and smile! Your place was/is better served in the home doing the required therapy. Playing catch up with ASD is not fair to your child.

Stay home. Move. Do whatever you have to. Realize that whether paid or not, (regardless of titles or notoriety), anyone interacting or intervening in your child’s life is only brief. You are the eyes your child will look into, the shoulders to lean upon and the hand to hold 10, 20 30 even 50 years from now. Knowing that you did everything will make that a great place to be.

Learning/teaching through play has become a way of life. Home therapy has been like living in a ‘Mary Poppins’ movie. It is FUN! It’s not that hard but you must be there for your child 24/7. Any changes in your child’s routines by anyone will set you and your child back immeasurably. Again, I also tried the diet but fortunately never jumped on the vaccine wagon or spent anytime suing or retaliating. I realized there were only so many months, days and even minutes to do what I could do for my son.

You are the only one ultimately responsible for the shaping of your child. With ASD, you only have a small window of time so you’ll need to use it wisely.

My son was and is perfect to me. I love the world he has made us create for his growth. It is simple and it works. I learned from other parents with similar remarkable results.

It is never too late to truly make the sacrifices to put your child’s best interests first.

SHARE+CARE=AWARE!

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Autism, Day Cares and Home Businesses

Though you may not know this yet, day cares are not a good place for your child with Autism. In actuality, the overwhelming majority of day cares do not have the correct programs or ratios to support the needs of your child. Day Cares cannot legally take your special needs child without special accommodations.

Day Cares will most likely prove in the long run to be detrimental. Single stimming, or the textbook way of thinking of the child with ASD as ‘living and playing inside himself,’ is not as a rule a positive thing. Social interaction is desirable and ultimately critical. Speech delays, poor eye contact, seeing the world differently, not understanding facial cues, expressions or cliché’s, and just overall fear are all reasons your child will stay locked inside.

You as his interpreter will no longer be there to bridge the many gaps and he will recede inside himself without you. Routines that support interaction and communication and the ratios of KNOWLEDGEABLE persons to assist your child are what you must look for. Unfortunately, (or fortunately), kids with ASD LOOK typical! Therefore, parents are able to put them along side typical kids in day cares in order to go to work. The problem is further enhanced when you realize that the small early intervention window, (that you play the biggest part in), that will be the greatest therapy and hope for a fully functional life, will be missed.

 A typical day care is not trained, qualified nor are they even licensed to support any special needs child. A conversation with a regional day care until administrator revealed that should a day care KNOW or even SUSPECT that a child has special needs, they must contact appropriate persons or risk their ability to run a business. This is a huge but necessary sanction. Often times parents, especially first timers, may not realize their child is developing slowly or differently than typical kids. An educated and experienced child care worker will see many more signs of delays and is legally obligated to act upon such discoveries.

The probability is that whether in a school based program or a community program, your child needs one on one support, or a ratio of 1:1. This can be written right into your children’s Individualized Education Program, or IEP, in the school system. The same holds true in the community. If you are using State monies for day care, you can go to them to add a 1:1 in the day care for your child! Note: this is not a person the day care uses to avail them to taking a larger case load. This person or chaperone is solely there for your child. You may also be able to find someone to watch your child in his ‘natural environment,’ or, the HOME. There are programs to pay for this as well.

How important is this? Since ‘moms’ have been removed from the home and joined the ranks of societal equals to their working counter parts, our family system as we knew it has unraveled. Drugs, gangs, dysfunction, criminal behaviors and Autism have all risen at an alarming level. The “wait until your father gets home,” way of life also meant that mom was her child’s 1:1 at all times. A stay home parent is the one who would have been working passionately with her children to shape them. No one will care for your children like you and taking both parents out of the home has ruined the very thread of our society.

 Being a homemaker is still, by far, the most underrated and most important job of all. In Germany, a parent is paid ‘kingergeld,’ (child money), to stay home with their kids. Rules like school attendance and working to capacity provide the basis on whether or not the stay home parent would get paid. Their overall penal system and social systems have been greatly reduced since this program was put into effect. So, you’re thinking, “what do I do?” Work from home is the answer. I caution and re-caution you to be careful about this next step. EBay, Google, Mary Kay, MLM, SEO, etc…are all areas where a person can learn to mold a career. There are numerous courses, most designed to re-invent the wheel and tell you what you can find blog surfing for free.

There are a million web sites to teach you to make money at home and double that many telling you how to get to the websites that tell you how to make money at home. You will need to really do some homework and stay away from overzealous testimonials. People can get paid to say almost anything. There are good courses and a fair price is around 250.00 to teach you the basics and provide ongoing support while you are learning. The rest is up to you. Like anything, once we are given tools, the usage of the tools is what will make or break our success. Don’t waste money on anything that looks too good to be true.

Where to start? Start with free! Write reviews about things you purchase and know about. Try writing blogs about your ideas or areas of knowledge. Tune up your writing skills because ‘fresh’ material is a great stepping stone to making a home business successful. If you have the money, you can certainly take these online classes. When you find a program which sounds great, search the name of that program with a word like ‘review’ following it and you will see what other peoples experiences have been. If you have no money, then do a lot of searching through blogs to see how and what others are doing. You can get started for nothing. Go through your house and start selling things you don’t need. You’d be amazed at how your ‘junk’ could be someone else’s eBay ‘treasures!’ Have you seen what your 70’s and 80’s memorabilia and apparel are selling for? There is a good amount of start up cash to be found within your garage or basement walls. I spent 6 months to find the correct course for me but still don’t haven’t time to finish it! If you decide to work from home, I do reccommend this one!

 http://catameow.cpainstrum.hop.clickbank.net

I spend a little time each day and have already begun to see the money trickling in. I have at least learned the basics of web building and HTML which is a useful skill I can use later in the workforce. You will probably never see your account earning the amounts you see posted in hyped testimonials. I will promise you one thing; there is no easy way to make a home business happen. Like anything, a home business will take hard work and dedication but it will keep you at home being the 1:1 your child with ASD must have.

Autism is the beginning of a new life. Nothing will ever be the same. In fact, your journey will be the most remarkable calling and test of your life. Knowing that you have made the difference in your child’s life will be the second greatest reward of your life. Seeing your child’s ASD turn around into a functional, happy life will be your greatest reward.

Share+Care=AWARE!!

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AUTISM. Advocating your child’s EDUCATION.

AUTISM. Being your child’s educational advocate.

It’s that time of year again where parents will meet with their school districts to write their Individualized Education Programs or IEP’s. These are mandated by the Individuals with Disabilities Education Act or, IDEA laws. My ‘other mother,’ (who has her Masters is Education), told me, “if every parent knew their IDEA laws, the school systems would go broke.”

As the parent/ caregiver of a child with Autistic Spectrum Disorders, ASD, you will need to be an educated advocate in many areas of his life. Picking up, reading and understanding the IDEA fundamentals from a recent copy of, “Wrightslaw: Special Education Law,” will make you an invaluable resource for your child. There is no excuse for being unprepared for these meetings which will determine in great part your child’s ultimate functionality and success.

I recently read about a mother whose argument with her school district was, in part, in reference to her son’s handwriting. A recent Japanese study involving middle and high school aged children advised on this subject. The findings showed that kids with ASD, but more specifically, Tourette’s Syndrome, ADD, ADHD with hyperactivity and other co-morbid diagnosis, would have substantially lower grades when forced to hand write their assignments. The implementation of computer keyboards and typing devices raised their grades from C and D averages to A’s and B’s!

Further, studies have shown that by allowing these affected students to complete homework assignments at school and NOT in their ‘natural,’ or home environments also had significantly higher grade results.

Parents/ caregivers who come prepared are a far stronger force than most realize. By law, the parents/ caregivers are never to be excluded from these importantdecision making meetings. You have the right to be heard and understood. Your home research and knowledge will prove to be invaluable. Even the simplest of rules, like knowing to use the verbiage of ‘accommodating and appropriate for your child’s diagnosis and ongoing therapy,’ will keep the systems from finding loopholes to refuse services. Knowing when a transfer to another school or district is allowed is extremely important. Each state has its own interpretations of how and when they are willing to transfer or contract out for appropriate services. Knowing these rules will keep you from spinning needless wheels while showing your school administrative team that you have done your homework and know your child’s educational rights.

My oldest son has a 504 plan which is not as powerful as an IEP, but certainly provides for ‘appropriate accommodations.’ His 504 plan includes having no HOME work, the use of a keyboard instead of handwriting, allowing for quiet time, allowing for frequent small healthy snacks to keep his constant high energy from wearing him down and even a rest outside when his anxiety is peaking. These things can all be a mandatory part of your child’s program but will rarely be offered. I even learned to bring in a supportive advocate at times when I knew it would be a ‘battle.’

If the system does not provide, they MUST accommodate. Test scores and specific diagnosis are the baselines for constructing a plan that will be therapeutic, stimulating and educational for your child’s special needs. The IEP’s and 504 plans also offer greater protections than those of typical students.

If the plan your child has in place does not seem to be working, you can always call for another meeting even if the next scheduled one is months away. Stay on top of this critical part of your child’s life and KNOW what you can and cannot do and/or ask for.

In my Autistic son’s first meetings, I walked out because the offers were neither accommodating nor even reasonable. A school district Occupational Therapist began coming to my home for 20 minutes once a week. I was already seeing a brilliant OT privately and had worked through the majority of occupational and sensory issues. My son needed speech. This was his diagnosed and obvious primary area of delay and disturbance. She gave me a copy of Baby Einstein which would have actually have been detrimental and I showed her the research to justify this. I then went on to show her my collection of ‘Prescool Prep’ and ‘Baby Bumblebee’ highly accredited ASD DVD series. She asked me to make copies for the other 3 children affected with ASD in the district! This would have been illegal. To make matters worse, she always replied,  (when I repeatedly requested that a speech person should be coming to my home); “he’ll get speech when he turns 3, it really won’t matter.” Since 70% of a child’s learning and language foundation is finished by the age of three, I knew that not only did his lack of having appropriate speech therapy matter, it was CRITICAL. I immediately called for a new IEP meeting when I realized she was, in my opinion, completely without any Autism Awareness. A degree not backed by ongoing research carries little or no merit in any area where ongoing research is being performed.

Your leverage is the laws and the fact that a child with Special Needs is worth as much as double and triple the tax monies as the funding for a typical child should put you in a position of empowerment not groveling.

In an instance that I can personally speak from, for a curricular school year, (September-June), a typical student brought an award to the school for $5,000. A student on a 504 plan was worth approximately $8,000. A student with an IEP at early Intervention age brought the district a whopping minimum of $14,800 or three times the amount of a typical student of the same age. Their offer to have the schools OT visit my house for 20 minutes once a week and no speech therapy to a severely speech delayed son was unacceptable.

I continued to battle until he finally was allowed to attend school 2 times a weekwith a speech teacher. The teachers, though kind and well meaning, did not have the educations, Autism studies , programs or even tools to make an accommodating and proven difference. After 14 months of battling by trying to transfer to another district or contract out for services which allegedly they MUST accommodate but were not, I gave up. I was in the 48th worst state for ASD resources and I knew that I had to do better for my son.

I moved to New York where my son’s IEP would finally be written to accommodate his special needs. With New York’s 5 day a week speech program, with a speech therapist fully acquainted with current Autism research and cutting edge therapies, (and every other imaginable accommodating resource),  my son went from mumbling and to a greater extent, ‘speechless’, to fully conversational in 2 months.

He began playing board games, speaking, (though very impaired), making eye contact, singing, dancing and HAPPY in only 2 months. I was completely in awe of the provisions given to my son in New York State. I was also in disgust of the state I came from.

If I had to pay out of pocket in my former state for the services he was receiving in just the curricular year, it would cost in excess of a half a million dollars! By the time my son has finished his two years of Early Intervention before starting Kindergarten in NYS, he will have received well over a million dollars worth of therapy. I did not have to beg or battle, these services were given to my son on a silver platter.

Had we not moved, my son, (as a child who would not have received appropriate and accommodating therapy), would have cost taxpayers anywhere between 3.7 and 77 million dollars in his lifetime depending upon his assisted living, medical, educational, personal and therapeutic needs. So, who is short sighted? The 42 states that do not provide appropriate services are.

If I didn’t know the laws I wouldn’t have known what he could and should be getting, though the verbiage does say the initial school district MUST accommodate. It’s despicable and injurious that so many states allow for this. A fellow parent of a child with ASD in the state where I was has sued the school systems there at least 4 times, and won each time. The schools still did not change and are still not accommodating.

Clearly, knowledge and leaving the door open to move are essential. In many cases, even just a move to another county will make the difference. In other cases like mine, moving over 3,000 miles away did the trick.

Remember, stimulus monies are given to the schools according to your child’s diagnosis and anticipated needs…not for what they are actually providing! This allows school systems to ‘fly under the radar’ by offering substandard and sometimes ridiculous individualized educational programs. If you don’t know what your child needs and what you can and cannot ask for, in most cases they won’t tell you either. Therefore, you need to be prepared.

For early intervention, I strongly advise parents to look at the SPICE program atElmcrest in Syracuse, NY. Their programs not only provide and accommodate ASD and other special needs, their success rates are unparalleled. You don’t have to battle, they automatically provide and offer far more than most caregivers could ever imagine. SPICE has a resident Social Worker to help gain information and hands on help with acquiring community and/ or State services. They even have a resident ‘Mary Poppins’ with her master’s degree in Play Therapy. ‘Learning through play,’ and Board Certified ABA are pivotal in the treatment and healing of ASD. The results of this program, designed and run by Dr. Leah Phaneuf, PhD, speak for themselves and should be used to not only provide a blueprint for all early Intervention programs related to ASD, but it can be used by you when battling for your child’s IEP, no matter where you live.

The very basics you need when comparing programs begin with:

The need to know your child’s individual special needs and IDEA lawswhensearching for an appropriate and effective school program. Many head start programs are beginning to accommodate the early intervention needs of a child with ASD. Each program is unique, and each teaches a child with ASD in different ways. When deciding on a school, consider the program’s emphasis on:

  • Social interaction with both other children with special needs and with typical children. Children with ASD mimic. Inclusion with typical kids provides that your child will have appropriate behaviors to copy instead of other behaviors associated with ASD.
  • Family involvement, which does mean you. As the great Beth Wilder, OT, said to me, “even the greatest therapist or therapy would have no effect without the continuity and continuation in the home, or ‘natural environment.’ Since the Board of Pediatricians has stated for years that a child affected with ASD MUST receive 40 hours a week of Board Certified ABA for at least 2 years. This means you will have to be closely following the techniques and routine patterns which are used in the school. If your child’s school program does not include classes and/ or some form of training for you, then find another or battle to be trained yourself.
  • Range of activities. Not every child with ASD is the same. What works for one child may not work for the other. A wide array of activities ensures that each child’s niche(s) will be discovered, accommodated and realized.
  • Structure of environment. A Board Certified ABA Therapist at the helm will guarantee that your child’s daily and overall plan will be structured with a correct mixture of teaching, therapy, play, routines and other special needs.
  • Curriculum is key. Children with ASD can learn everything typical children learn but they must learn it differently. The ‘techniques and curriculums may differ program to program.
  • Collaborating with other services student receives (i.e. counselors, doctors, etc.) In the instances where a child’s specific needs cannot be met within the school program, it may be necessary to contract out for a provider to see your child privately or be brought into the school. Issues like potential hearing, vision, speech apraxia and so forth typically require appointments outside of the school.
  • Appropriate therapies typically include but are not limited to, occupational therapy, OT, speech and language pathology, SLP, physical therapy, PT, play therapy, sensory integration, SI,  inclusion with typical children, art and music programs and most importantly, Board Certified Applied Behavior Analysis, ABA.
  • Teacher to student ratios are critical and you can at the early intervention ages, ask for a 1:1, or chaperone, (sometimes known as ‘shadow’), for your child.

Be prepared. Your child’s diagnosis of Autism has changed your lives forever. Getting accommodating therapies from the school systems will typically ensure that your child realizes his ‘high functioning’ ASD potential and will avoid falling between the cracks.

Your life as you knew it has changed. Knowledge of the IDEA laws will enable you to be an excellent advocate and resource for your child’s growth, future, functionality and successes.

Welcome to Autism.

SHARE+CARE=AWARE! -C.A. Curie


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AUTISM. DENIAL. The death of John Travolta’s son.

John Travolta’s tragic denial of ASD /Celebrities who embrace it.

The Travolta’s, 56 and 48, enjoy photo shoots and a People Magazine interview celebrating the birth of baby ‘Ben.’ January was also the 2nd anniversary of the controversial death of their son, Jett. Jett Travolta was affected by Autistic Spectrum Disorders, ASD. 

There are numerous celebrities today with family members affected by ASD. (see below). Denial for any reason should no longer exist. That’s what makes this all the more tragic. It shouldn’t have happened.

John Travolta’s recent article announcing his son’s birth was recently featured in People Magazine, January 12, 2011. Benjamin Travolta entered this world as his father, John and sister, Ella Blue watched on. Long time close family friend, Kirstie Alley waited in the waiting room.

While many might look at this picture seeing a happy Hollywood family, this writer is left wondering about the future of baby ‘Ben.’ If the Travolta’s are going to remain in the Church of Scientology, then Ben needs to be as ‘perfect’ as his sister.

Just two years ago, the Travolta’s tragically lost their 16 year old son, Jett while vacationing in the Bahamas on January 2, 2009. Jett, who had a long history of seizures, was discovered by a caretaker. The boy lifeless body was found at 10 a.m.,  some time after hitting his head on a bathtub during one of his seizures at The Grand Bahama Hotel.

A child who has a history of seizures should never be left alone, away from the hearing distance of a caretaker and above all, in a bathroom. As every parent/ caregiver knows, the prolonged sound of silence is the most frightening sound of all. Jett Travolta was completely alone during his last breath. He was only a child…with unanswered special needs.

Jett was suspected as having Autism since he showed numerous red flags at the age of 2. John Travolta has been a long time member of The Church of Scientology, founded by L. Ron Hubbard. Scientology does not acknowledge Autism as an ‘acceptable’ or pre-disposed condition. They state that Spectrum disorders are brought on by the person themselves and are therefore seen as an ‘unworthy person.’ This being said, the Travolta’s quickly labeled their son as having Kawasaki Disease, a curable disorder more acceptable to their church. I cannot imagine any act a 2 year old can do to bring anything but love upon himself.

Causes of Kawasaki Disease as stated By Mayo Clinic staff;

No one knows what causes Kawasaki disease, but scientists don’t believe the disease is contagious from person to person. A number of theories link the disease to bacteria, viruses or other environmental factors, but none has been proved. Certain genes may increase your child’s susceptibility to Kawasaki disease.

This definition should serve as a slap to the Travolta’s and the Church of Scientology as they blamed Jett’s condition solely on bathroom floor cleaners. Jett’s mother, Kelly Preston, went so far in her efforts to lend their ‘Kawasaki’ story credibility and please their church, she become a spokesperson for ‘green’ cleansers.

Since it is suspect that Kawasaki Disease is linked to genetics, then perhaps the Travolta’s should have just labeled their son’s  pre-disposed condition forwhat it really was, AUTISM. But then there was the church…

The Travolta’s put Scientology before the best interests of their own child.

The denial, brought on by the shame of the church and a convenient myth about floor cleansers was noticed by the world. There are numerous celebrity parents with children diagnosed with Autistic Spectrum Disorders, ASD. In an article published in Hollywood, Interrupted, a cry to the Travolta’s concerning the denial and lack of treatments for their son appeared.

A PLEA FROM HOLLYWOOD: JOHN TRAVOLTA – OPEN YOUR HEART! – April 10, 2006

On Friday, April 7th, Hollywood, Interrupted was treated to the Los Angeles premiere of “Normal People Scare Me” – a feature-length documentary about autism, co-directed by the high functioning autistic teenager Taylor Cross and his mother, Keri Bowers. The event was sponsored by an organization called Cure Autism Now (CAN) and the new magazine, The Autism Perspective (TAP).

 
 

This enlightening film was produced by b-movie actor/director/producer and former special education teacher, Joey Travolta. Joey’s brother and sister-in-law, “Battlefield Earth” co-stars John Travolta and his wife Kelly Preston, were not present. Too bad…

…Had John and Kelly been at the screening, they might have a better understanding of the disorder reportedly affecting their 14 year-old son, Jett. Sadly, the Scientology couple cannot even publicly admit that their son is afflicted with a neurological disorder, lest – according to the incontrovertible doctrine of Scientology founder L Ron Hubbard – he be labeled a “degraded being” that brought his affliction onto himself. Instead, the Travoltas have long blamed their son’s disability on Kawasaki Syndrome-related “environmental toxins,” specifically carpet cleaning chemicals.

Sylvester Stallone, who’s son Seargeoh, affected with ASD was said to be behind the article as well as opera singer, Pheobe Snow, whose daughter also has ASD.

The award-winning documentary taught people about autism, which can cause violent seizures. Joey also formed the group Actors for Autism, which helps autism sufferers make films about their lives and experiences. 

According to Hollywood Elsewhere, John and his wife Kelly Preston did not attend a 2006 autism event, Cure Autism Now, at which his Joey’s documentary was screened.

The friend told the Mirror: “Joey could see Jett in every one of those 65 kids he spoke to (for the film.) It was so obvious Jett was autistic just from spending five minutes with him, but the cruel fact of their religion meant his parents simply did not accept it.”

Since Joey Travolta was a Special Education Teacher we can only believe that the entire Travolta family knew the signs of ASD well. They were exercising deadly denial in an effort to please the church. Joey was frequently known to argue with his brother about their denial concerning Jett who obviously had ASD. The combination of Joey stating that he saw Jett in every child he interviewed before making his movie, and his degree in Special Education, clearly made Joey capable of a weighty, believable,  pre-screening diagnosis of Autism.

There are rumors that Joey produced this movie in an effort to save his nephew. What an incredible slap in Joey’s face that his brother and sister in law did not even attend his films debut. Perhaps if the movie had been about inconsequential high school kids from the 50’s, dancing on top of cars and table tops, or an ignorant high school boy with a Brooklyn accent, John would have made an appearance. My opinions about this actor and his wife have changed immeasurably.

The Church mandates that no interventions allowed; that any afflicted person must let prayer God alone heal a condition.

Scientology doesn’t recognize psychology or psychiatry as being valid (remember when Tom Cruise blasted Brooke Shields for using anti-depressants for her PPD?) DSM diagnostics are not used by scientologists.

Scientology critics predicted Jett’s death as remembered in a 2009 article; http://blog.zap2it.com/pop2it/2009/01/avid-critics-of.html

The many times that Kelly Preston-Travolta was seen in public, it was normally with their daughter, Ella Blue. Talk shows with John and/or Kelly regularly heard them boasting about their “perfect princess”, Ella, but rarely mentioning their first born, Jett. Paparazzi photos showed any shots of Jett with a hoodie on, listening to music to drown out ‘unfiltered noises’ or in numerous cases, showing another typical symptom of ASD,  making poor eye contact. Reportedly, John would not stop for interviews when accompanied by his iPod distracted son, Jett.

Kelly often showed clips of herself and daughter Ella Bleu, or “princess” as she was called.  In comparison to endless photo opps taken with Ella, there are few shots of mom with Jett after he turned 6. Sad.

There are numerous therapy interventions that could have dramatically improved and/ or prevented Jett’s seizures. Nutritional, behavioral and pharmeceutical interventions can not only lessen or completely eliminate seizures, but also show long term improvement in EEG results.

The contention that prayer alone would have cured Jett Travolta puts the blame of his death purely in his parent’s hands. Sadly too is the fact that a child, Jett Travolta, was completely alone in a closed bathroom when his death occurred. I feel it safe to say that being alone and terrified at the moment of our demise would be the saddest and scariest moment of all. He was still just a child.

As well as there being no proven link to ‘floor cleaners,’ the Travolta’s diagnosis of Kawasaki’s Disease, when accounting for their son’s seizures has been disqualified. According to the Telegraph:

…”some health experts say there is no link between Kawasaki and seizures. However, it’s reportedly common for sufferers of autism to have seizures if they are left untreated.

Autism is often associated with epilepsy. Nearly half of autistic children in the U.S. are prescribed anti-convulsion drugs. About a third develops epilepsy. Many suffer from seizures that can begin in adolescence.

And, according to many experts, there are dozens of drugs designed to help…”

Again, Jett did not have Kawasaki’s Disease, in fact, his seizures were only further evidence that he had ASD, which would shame him and his prideful parents in the eyes of Scientology

Were Jett’s seizures treatable?, YES.  Is ASD treatable? YES! Should Jett have been left alone with a history of seizures? NO! Are the Travoltas to blame for his death? You decide.

How ironic that the couple just happened to be in the Bahamas, and were not even close by to hear the fatal sound of a head crashing onto the side of a bathtub or at the very least, to discover their son’s dead body. Gross negligence resulting in the death of a child carries severe penalties in the US. Celebrities often skirt sanctions typical citizens of the US are sentenced to. In short, John and Kelly could have been writing their memoirs from their cells. In this country, there is no statute of limitations on such a negligent crime.

John, 56 and Kelly, 48, are celebrating the birth of Benjamin. I wonder if John knows that once you have had a child with ASD, the likelihood of having another is greater than 20%. (This estimate is based upon the global reports of 1 in 68 with less than half of all persons screened.). Further considerations should be given to their mid-life ages. Autism is more prevalent in older (25-35), and more affluent parents. Delaying childbirth increases the risk of having a child with ASD 50%. Autism is genetic and pre-disposed. The same affected genes that made Jett are MUCH OLDER and now present in Benjamin.

John and Kelley are batting one in less than 30 that Benjamin will have at least some form of ASD. I can only hope that the Church of Scientology’s shame will not keep them from saving their second little boy’s life should ASD occur.

There is no shame in having ASD or a child with ASD. Reports of present day Autism, with less than half of all persons screened is greater than 86 million. No other disability in the history of life as we know it has reached these numbers, and it continues to grow.

Those of us struggling to get therapy for our children would be remiss if we did not acknowlege that with the amount of money John has, accommodating services including OT, PT, SLP, Sensory Integration and most importantly, ABA, (Applied Behavior Analysis), could have easily been paid for privately within their home.

No one should be able to use religious teachings as a justification for denial. Whether it be a fire crew responding, medics rushing to the scene of a car accident, or a seizure resulting in a deadly head injury, the knowledge of a person’s diagnosis is essential in saving and treating lives. Denial is deadly.

Yes, there have been uncountable diseases and conditions put upon this earth, but there are also the sciences and materials to treat them. Whoever you deem your creator to be has provided BOTH. We all have the same passport.

I recently provided in my article, Embracing the Label of Autism, February 7, 20011, a list of innumerable and ‘shocking’ famous persons affected with ASD. Here is a partial list of famous persons with family members and children affected by ASD. I am in great hopes that as these people come forward for diagnosis and treatment, so will you. Not one single Jett Travolta needs to die needlessly left alone again!

These deliberate pictures, (in an attempt to dispell rumors of ‘Autism’ about Jett), though certainly posed, at least give us the face of a boy with his dad, mom and sis that we’d like to believe in and remember. This last picture is the most touching of all…Jett comforting his father.

I’m sure I speak on behalf of so many.  Jett, we hardly knew you; never having  heard your voice, and only now really memorizing your beautiful face. We pray that your dark world is now bright, your scared heart filled with everlasting, comforting love,  your tortured body is flying with downy wings and your silenced voice replaced by the singing of angels. Jett Travolta, we promise you now, you have stolen our hearts. You are never forgotten.

God Bless and Keep you. -Amen

Isn’t it ironic that John lost out of the male lead in Splash to Tom Hanks. Tom Hanks is also Autistic.

Celebrities with children or relatives diagnosed with Autistic Spectrum Disorders, ASD.
 Richard Burton, deceased actor – oftentimes talked about his daughter by his first wife, William Christopher, Father Mulcahy of the TV show M*A*S*H – speaks about his son, Ned, Myron Cope, Pittsburgh sportscaster – talks about his son, Joe Mantegna, actor – is a father of daughter with autism, Mark McEwen, TV weatherman on CBS Morning News – speaks about his brother, Sean, Tracy Rowlett, Dallas anchorperson – has an autistic son, Jonathan Shestak, movie producer – talks about his son, Dov, Sylvester Stallone, movie actor – speaks about his son, Seargeoh. He hopes that before he dies his son will recognize him as his father. David Tomlinson, actor who starred in Mary Poppins, Bedknobs and Broomsticks, the Love Bug – had an autistic son whose diagnosis and education is mentioned in some detail in Mr. Tomlinson’s autobiography, Luckier Than Most, Will Clark, Baseball player – speaks about his son, Tom Henke, Toronto baseball pitcher – talks about his son, Doug Flutie, football player – speaks about his son, Doug Jr.,  Merton Hanks, football player – about his daughter, Milan, Scott Mellanby, hockey player – about his son, BJ Surhoff, Baltimore baseball player (1996) – about his son, Mason, Dan Marino, football player – about his son, Wynton and Brandford Marsalis, jazz/classical musicians – talks about their brother, Beverly Sills, opera singer – about her son, Bucky,  Phoebe Snow, singer – is a mother of daughter with autism, Toni Braxton, singer – has a son recently diagnosed with autism, Paul Collins, writer – about his son, Audrey Flack, sculptor and photographer – mother of an adult with autism, Stephen J. Gould, scientist and writer – about his son, Jesse, Jenny McCarthy’s 4 year old son, Evan- was initially thought to be autistic, (Landau-Kleffner Disease), Gary Cole’s daughter is Autistic, Aidan Quinn’s daughter is Autistic, Catherine Zeta Jones and Michael Douglas son, Dylan- has delays characteristically ASD, and finally this writer wishes to end on my devastating discovery that on January 6, 2007, Burt Bacharach and Angie Dickinson’s daughter, Nikki, 40,diagnosed with ASD, took her own life.

According to a statement about Lea Nikki Bacharach, or ‘Nikki’, by Linda Dozoretz, a spokesperson for the family, “she quietly and peacefully committed suicide to escape the ravages to her brain brought on by Asperger’s.”  Nikki Bacharach died of suffocation using a plastic bag and helium according to Mike Feiler of the Ventura County Coroner’s office.

Nikki’s January suicide anniversary was followed just 2 years later by the controversial death of Jett Travolta. I cannot  imagine what Burt, Angie and all parents think and feel, whether their children are affected by ASD or not, about the tragic and unnecessary passing of any  child…after they have lost one of their own. 

 Nikki Bacharach worked in movies and also sang with her father. This song was written by one of the world’s greatest composers, the loving father of a daughter affected with ASD. Burt Bacharach’s music has sung to the hearts of us all forhalf a century.

The song is entitled, “Nikki.” Though it was recorded for a Movie of The Week and became a hit without it’s lyrics, I was finally able to find them. I am also the mother of a child with ASD. I have dear friends who have lost a child unnecessarily. I know that mom, and countless others,  will join me in tears for the words put down for Nikki, from her daddy 

 “Somewhere there is sunshine.
Somewhere days are warm.

Somewhere there’s a happy harbor
far from the storm.

Out where the sun shines there is someone
I’m meant to adore,
and I know the day I find her,
I’ll smile once more.

Nikki, it’s you.
Nikki, where can you be?
It’s you, no one but you for me
I’ve been so lonely since you went away.
I won’t spend a happy day
’til you’re back in my arms.”

 

With January 2011behind us, the Bacharach’s and the Travolta’s, have just made it through another anniversary of their children’s passing. Our hearts go out to all parents who have out lived their children, and especially to those who have lost a special child affected with ASD. 

Share+Care=AWARE.

This article is the result of countless hours of research and tears. It did not start out to be, nor is it meant to be an attack on John or his family. It is written with great reserve and remorse. However, as I made my discoveries and searched for facts and pictures, the realization of the injustices in this huge tragedy presented itself upon me like being smashed into a concrete wall. “I got chills…”

Like everything, I ask you, my readers, to do your own homework and draw your own conclusions.

This writer is finished contributing to John Travolta’s career.

I can never feel the same, never.

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AUTISM. Flu Season vaccines STILL contain Mercury?

AUTISM.  The Flu Season and precautions with vaccines.

Winter has been harsh this year and in some areas, highly unusual record breaking temperatures and conditions were recorded everywhere. With the end of January comes the season of Influenza. The University of Wyoming reported their first case on January 21, 2011.

Influenza (flu) is a contagious respiratory illness caused by a virus. Symptoms include fever, headache, extreme tiredness, dry cough, sore throat, runny or stuffy nose and muscle aches. Influenza can cause severe illness and complications, particularly among older people.

Tips about keeping the spread of the flu are now posted almost everywhere. Emphasis on washing your hands, (for more than 20 seconds using a rubbing, friction action), and of course, covering your mouth when you cough with the inside of your elbow and not your hands are the best precautions.

Though mercury in vaccines does not cause Autism, the heavy metals most certainly trigger and further complicate it. Once a child has been diagnosed with Autism, it is globally recommended to limit intakes and exposure to heavy metals.

Mercury has allegedly been removed from all vaccines with the exception of some brands of the flu shot and some plain tetanus and diphtheria-tetanus shots. All other shots on the standard schedule either have no mercury at all or have it filtered out to barely detectable amounts.

Parents need to be both prepared and comfortable in questioning their doctors about the injections being given to their children with Autistic Spectrum Disorders, ASD. Dr. Sears of L.E.A.N. reports that Fluzone is the only 100% mercury free brand for infants, but parents need to make sure it’s the single-dose version of the shot. The large 10-dose bottle of Fluzone brand still contains the full dose of mercury.

With winter ending and the Flu season upon us, before vaccinating your child with ASD, ask your doctor for Fluzone. Tell him you demand single doses for your child’s age/ weight versus the cheaper method of drawing from the larger, mercury laden bottle. Be prepared to pay a little more.

Always remember to delay vaccinations of any kind if your child is already sick. A compromised immune system is not prepared to handle vaccines.

Heavy metals play a part in the interruptions and seizures associated with all spectrum disorders. Though Autism is pre-disposed, we certainly do not want to add to the barrage of interruptions already present in the brain of an Autistic child.

Be informed and be tough. Being your child’s advocate is a part of the remarkable journey of Autism.

Care+Share=Aware. -C.A. Curie

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AUTISM. MAYO DECISION IN, The Gluten Free Casein Free Diet is OUT!

AUTISM. Mayo Denounces The Gluten Free Casein Free Diet!

On January 26, 2011, in a Q&A portion of its website, the Mayo Clinic weighed in on the gluten free, casein free (GFCF) diet for autism. Dr. Jay Hoecker, emeritus consultant for the Department of Pediatric and Adolescent Medicine, stated that there was “no evidence that special diets are an effective autism treatment” and that “restrictive diets can lead to nutritional deficiencies.”

Thanks largely to an ever present lack of Autism Awareness in the US, campaigns like the ‘Gluten Free, Casein Free Diet’ are far more hurtful than helpful. These greed induced media bombs, like the vaccine tragedy, are the ‘smoke and mirrors’ that keep true therapy seekers distracted from the required 24/7 hard work in the home that IS CRITICAL and PROVEN in Autism healing/ growth.

We are a society that points fingers, sues and witch hunts. We blame each other, schools, vaccines and anything else we can while looking for quick fixes for everything.

Any home brewed diet based upon lack of evidence, (or not), should not be used haphazardly. A professional nutritionist or doctor should be overseeing any type of diet being used on a child and on a frequent basis. Without these measures, you can leave your Autistic child further behind the eight ball than he already is. Not many caregivers have access to the knowledge and diagnostic tools, (like blood work, urine samples, Blood pressure, vitals, interpretations of, etc… ), or nutritional savvy needed in order to keep a constant monitoring on a child’s well being.

My son’s healing, (at a very rapid ace), began when I had gotten off the diet and put him back on milks, yogurts, Happy Meals, Pediasure and Ensure. The theory that the GFCF seals the ‘leaky gut’ and therefore ‘chelating’, (ridding the body of heavy metals), looks great in print. The missing piece is that regardless of the measures you take, we are dumping the heavy metals right back in! So, why bother spending all that time and money? It just doesn’t work. (Chelating has also been disproven but that’s a forthcoming article).

This should not be the battle. We are spinning wheels and focusing on ‘fads’ other than the proven facts about what exactly heals our children. I have never read a single shred of paper stating that ABA, (Applied Behavior Analysis), floor time, complete dedication, the ‘Mary Poppins’ approach, learn through play or any other behavior modification based therapy was disproven or brought into question. That’s what we should all be doing. It works and it cannot hurt.

Australia, the UK and India are leaps and bounds ahead of us on their Autism awareness and ‘curing’ percentages. (‘Curing,’ meaning the goal of functioning, happy, communicating children showing significant growth and results). Those countries are basing therapy on behavior, not diet modifications.

All children need to eat well. Most cannot afford specialized diets. Everyone can afford to learn correct therapy.

Temple Grandin’s mother did not use the GFCF diet. Neither did the majority of parents of the greatest known Autistic adults who are now fully functional. These are facts.

One can search any number of alleged ‘fixes’ and find someone touting ‘results.’ My son is my result. The parents I study with and blog with are real. The diet has failed. The positive results in all GFCF studies could also have been brought about by other factors, (like having a highly animated and charismatic Jim Carey move in).

The GFCF Diet is expensive, (to say the least), and making poor families spend their last dime or feel terrible that they cannot afford it is just cruel. Autism is more prevalent within the upper middle and richer classes and the more educated. That means that the people who don’t even know about the diet, cannot read about it and cannot afford it have less cases of Autism in the first place. Hmmmm…there’s that common sense thing again.

Enough said for now. Positive and correct proven information will stop another vaccine scare or fad diet from overshadowing the critical work and societal readiness that should be happening.

Did we not learn anything from the ‘AIDS’ era? We were so busy jumping on misinformation band wagons and stereotyping that other nations grew more than 10 years ahead of us on the ‘cure!’ How many of our loved ones were unnecessarily lost during that time period? We are still grieving. We were dead wrong. As a result, countless lives are dead because we were wrong.

Let’s not repeat such a horrific pattern of ignorance.

I, like many other parents, am witnessing the behavioral modification based complete turnaround in Autism. My son and I are living it right now. It is remarkable, miraculous and above all, it is free.

How many millions of dollars need to be spent on administering, researching and ultimately eliminating completely this diet fad? I say, Jen, have some decency, remove your book and come out and tell the truth. The Gluten Free, Casein Free Diet does not work.

Let’s not spend another penny on this fad.

Early detection and intervention of ASD is the bottom line. Let’s stay focused!

 

Share+Care=AWARE!

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AUTISM. Negligence, American Idol, The Beatles & JT Music & YOU.

AUTISM. Negligence, American Idol Hope and YOU!

The video below of Kaleb is heartbreaking! Although they titled it Autism Battle, this is not my work. However, this story  points out what life without appropriate and accomodating therapy for Autistic Spectrum Disorders, ASD, can be like. The lack of resources offered to this family ay the appropriate ages was not fair to Kaleb or his family.

They didn’t know.

42 states are either NOT providing or only minimally providing accommodating appropriate services for children/persons with Autism, ASD.

Applied Behavior Analysis, ABA,  MUST be given to children at ages 3 and 4! It can take 15 years to do what one year of therapy could have done at the age of 3!
IF my ex-husband, kids and I had not recognized my son’s early ‘words’ and attempts at speech, he would have lost confidence and never spoken too!

“ee-aw” meant “all done”. We began to use his words so that he would understand our acceptance and TRUST us enough to try our language.
It’s an age old common sense approach that works…but you need to know what you’re doing and cannot miss the first few fragile opportunities. If you were in Russia and didn’t know the language…had NO resources…would you ramble on in English if no one understood you? Imagine now finally meeting someone bi-lingual in English/Russian would feel. Relief and hope at last! You would begin to learn and speak their language. This is a ‘bridge.’

40% of all children with Autism will never speak because parents/ caregivers do not know what to do. These kids should be in school at by 2! Screening methods are horrible, doctors do not know the signs of Autism and accommodations are minimal or nonexistent.
There is no excuse for this.
If anyone out there is deciding on career, there are AT LEAST 9 HIGH PAYING JOBS for every graduate with an ABA degree!
This mom, these brothers…and the boy himself will never have the life they could have had. This is what needs to be said. His brain can learn EVERYTHING typical kids can learn, but he has to be taught differently. Playing ‘catch up’ with Autism is hard or impossible.
You cannot WAIT. This is why I moved back to New York. There are 8 states providing Early Intervention with ABA. These kids, if untreated, cost taxpayers between 3.7 and 77 million in their lifetimes depending upon their medical, therapeutic and assisted living needs.
Early Intervention with ABA through the schools costs less than .5 million WITH all the other therapies included! Physical therapy, occupational therapy, sensory integration, speech therapy, 1:1 chaperones, Applied Behavior Analysis, etc…
PLEASE see the SPICE program at Elmcrest in Syracuse, NY. Please study your IDEA laws and battle for your kids. Please be your child’s voice until he can speak and his soldier and advocate until he can battle on his own.
I thank God that I did the research I did, had the strength to get into the Court systems and self represent our relocation, and drive a moving truck across the icy country last year to get my son help 3,000 miles away.
You CANNOT wait. You CANNOT depend on anyone but yourself. You CANNOT change the state you are in while your child is missing his opportunity.
70% of a child’s learning and language foundations are DONE by the age of 3!
No, he doesn’t know 70% of what he will know, his WAY of learning, Operating System, will be done. After that it is just data input, memorization, reasoning, etc…
MOVE! Get out! I am foreclosing on a half million dollar, 10 acre horse farm. I am living in poverty on my disability and child support alone. I closed my 3 businesses. I have been eating from food banks and churches. I had to divorce my husband. I GOT HELP FOR MY SON.
I could not go through life as a mortgagee instead of the mother of a functioning, SPEAKING, (though extremely impaired), reading, writing, singing, dancing, making eye contact, functioning son!
I am not alone. 10 families a week are migrating from the 42 states that should all be held on criminal counts of negligence to these families and their kids.
The 8 accommodating states are going broke. Why? Our President has given BILLIONS in stimulus to help BUT 42 states are taking the monies and NOT ACCOMMODATING! They are flying under the radar!
The Medicaid in those states does NOT cover appropriate treatment…even if you can find it!
The schools have nothing accommodating in place but they take the money.
IF these funds went solely to New York and the other 7 states…we would have TONS of money, no budget cuts in this area, no waiting lists and NO unnecessary tax payer burdens…and the kids and families would be so happy.
My son also did not want to be touched. he would RUN from you. He hated socks. This is called Tactile/ Sensory Dysfunction. A few months of technique at HOME cured this.
He now LOVES to hug, kiss, cuddle, tickle and be tickled. Thank God we can hug him.
When I started studying after diagnosis, this was the FIRST thing I treated. It almost cannot be done later because of your strength and the grown size of your child.
Are we really going to stay quiet?
The parents/ caregivers need to focus on their kids and not worry about lawmakers…those of us who have time can proactively share videos, share blogs, do whatever you can to raise Autism Awareness.

Globally, Autism is 1 in 68 with LESS than half of all persons screened/ diagnosed. This presents a probable 1 in 30 right now and it is growing. http://autismbattle.com/signs-of-autism-in-children/
In 1980, Autism was diagnosed at a rare 1 in 10,000.
It’s NOT the vaccines…those aren’t even available in many areas where Autism is equally on the rise.
Vaccines trigger Autism to show its face so it can be treated at the appropriate ages.
Daryl Hannah, Tom Hanks, Dr. Temple Grandin, Bill Gates, Dan Aykroyd, Jason McElwain, James Durbin, Elvis Presley, Wolfgang Mozart, JAMES TAYLOR…the list is impressive and…They all have Autism!

For a longer list of famous persons with ASD and more information:

http://autismbattle.com/darryl-hannah-tom-hanks-famous-people-with-autism/ 

Please JOIN autismbattle on facebook…http://www.facebook.com/home.php#!/home.php?sk=group_147899615269293&ap=1

Please share videos and links of CORRECT information so there won’t be any more people slipping through the cracks It’s not fair!

Kids, go to college to help these neighbors, loved ones…remarkable people by getting your degree as a Board certified Applied Behavior Analyst. This treatment has been researched and embraced as the correct treatment of all Autistic Spectrum Disorders, ASD, by the Board of Pediatrics for over 10 years.The research is DONE and being ignored…why?
The general population does NOT donate nearly as much AFTER there is a ‘cure.’ When is the last time you gave to AIDS? Autism is a HUGE money making machine of bad DVDs, books, political campaign platforms, false studies and non effective costly treatments, diets…etc…which are misleading and downright deceitful…and they know it!
Where are all the people with Autism EMPLOYED by the ‘Autism organizations?’ You won’t find them.
This is wrong.
Watch the video of Kaleb. His mom knew there was something wrong early enough to have helped her child. She didn’t have the information or resources. This same boy here in New York or 7 other states would be going to school in inclusion classes right next to our kids and grandkids.

Please tune into http://www.autismbattle.com weekly.I will constantly update with techniiques, therapies, stories, tools and information to help.

I ask for everyone to NOT take my word face value…do your own research…be mindful of the dates, sources and motives.  Most importantly, are they making money by making you buy anything to get answers? I am not. Not a dime. These hours writing, posting, sharing and researching are yours free. I only ask that you please share too.
I can learn from your research. Knowledge and experiences as well.

What can we do? Our communities have accommodations for the hearing, sight, physically, etc…impaired,  but nothing is in place for these at least 87 MILLION people with ASD…

The number one cause of death with persons with ASD is wandering/ elements. Know the affected children in the neighborhood and look out for them. Parents, put logos and identifying symbols of Autism on your children’s clothing so that neighbors, emergency workers, retail associates and civil workers CAN keep a caring eye out for them.  Go to your neighbors and tell them your child has Autism. Have pictures and identifying information printed and hand it out. These kids look and sometimes act just like typical kids.

How can everyone help if they don’t know? This is no time for pride or denial. Don’t ever let it be too late. If you know a parent/ caregiver with an Autistic child, ask how you can help. I have personally gone 5 years without respite and the waiting lists go on for years. If you are in touch with lawmakers or are one, help bring in appropriate therapies and accommodating resources.

The number two cause of death with persons affected with Autistic Spectrum Disorders is drowning. Everyday an Autistic person drowns. Cover pools, know the affected children in the neighborhood and look out for them, Again, ask your lawmakers to bring in appropriate therapies, funding for existing or needed agencies and accommodating resources. Put gates around community lakes, swimming areas and even fountains.

http://www.autismkey.com/sink-or-swim-avoiding-an-autism-related-drowning/

Build restaurants with ‘picky eater’ menus and therapist supervised play areas where the children can see their parents and there are no play dangers…children with ASD number three cause of death is falling from heights. Keep play areas for them without tall structures please.

The face of ASD has been in our communities and gone undiagnosed. They may have seemed eccentric, unique, shy, extremely intelligent, talented or obviously affected.
The current favorite on American Idol, James Durbin is Autistic.
Iam posting a link to an amazing video that was NOT aired…a treat for all my friends who are Beatles fans…James Durbin slays the greatest version of “While My Guitar Gently Weeps”, I have ever heard. WOW. (I wish he would do the vocal part from Pink Floyd between TIME and HOME AGAIN)…:
src=

You will see that we have to help.
We can all be a part of this.
Remember this…the answers to ‘cures’ do not cost money. You don’t have to buy DVDs or books to get something like this. Websites like mine were nearly impossible to find in 2008 when my son was finally diagnosed. That’s why I’m doing this. Somewhere out there someone is reading this that need to know this or will join in making changes.
I am so grateful to have a computer and a laptop.  I am lucky to have the energy to stay up everynight doing my research and writing.  I am fortunate to have this ability to translate what I’ve learned and am learning into the therapies that are turning Autism, ASD, around in my amazing son.

I only wish I didn’t have to be so far from my older kids and my son’s daddy, (my ex-husband). These were the hardest sacrifices of all…for ALL of us.
I never knew we really could change the world. It really did start with the girl in the mirror just as Nay Nay said it would . We can all help make changes. At the very least, we can spread Autism Awareness.

‘ …I’ll be there to protect you, with an unselfish love that protects you. Whenever you need me, I’ll Be There…” -MJ

I feel like a bad Sally Struthers commercial at 2 o’clock in the morning pleading like this…but that’s OK too. This is no time for pride, shame, guilt or blame. This is time to share proactively however I can.
In the sense of functionality…in 85-90% of cases, Autism is ‘CURABLE’. These uniquely wonderful people may need accommodations, support, protection and some assistance…but they don’t have to be the stereo typical wall staring, head banging, speechless kids that my son not long afo was.
Thank you everyone.

I ask for everyone to NOT take my word face value…do your own research…be mindful of the dates, sources and motives.  Most importantly, are they making money by making you buy anything to get answers? I am not. Not a dime. These hours writing, posting, sharing and researching are yours free. I only ask that you please share too.
I can learn from your research. Knowledge and experiences as well.

What can we do? Our communities have accommodations for the hearing, sight, physically, etc…impaired,  but nothing is in place for these at least 87 MILLION people with ASD…

The number one cause of death with persons with ASD is wandering/ elements. Know the affected children in the neighborhood and look out for them. Parents, put logos and identifying symbols of Autism on your children’s clothing so that neighbors, emergency workers, retail associates and civil workers CAN keep a caring eye out for them.  Go to your neighbors and tell them your child has Autism. Have pictures and identifying information printed and hand it out. These kids look and sometimes act just like typical kids. How can everyone help if they don’t know? This is no time for pride or denial. Don’t ever let it be too late. If you know a parent/ caregiver with an Autistic child, ask how you can help. I have personally gone 5 years without respite and the waiting lists go on for years. If you are in touch with lawmakers or are one, help bring in appropriate therapies and accommodating resources.

The number two cause of death with persons affected with Autistic Spectrum Disorders is drowning. Everyday an Autistic person drowns. Cover pools, know the affected children in the neighborhood and look out for them, Again, ask your lawmakers to bring in appropriate therapies, funding for existing or needed agencies and accommodating resources. Put gates around community lakes, swimming areas and even fountains. Build restaurants with ‘picky eater’ menus and therapist supervised play areas where the children can see their parents and there are no play dangers…children with ASD number three cause of death is falling from heights. Keep play areas for them without tall structures please.

A local store owner in Syracuse, New York, Mr.Tai Shaw has offered to put free Autism Ribbon logos on one piece of clothing for all children in CNY with ASD for FREE. This is a tremendously generous and thoughtful offer and shows that we all can think of some way to contribute!
The face of ASD has been in our communities and gone undiagnosed. They may have seemed eccentric, unique, shy, extremely intelligent, talented or obviously affected.

This is a tragedy. This family is just starting appropriate treatments with ABA on their son, Kaleb who is far beyong the required age of 3-4 when this exact same therapy would have had maximum impact.

I moved 3,000 miles to get to the SPICE program in Syracuse, NY. I saw getting help for my son with Autism no less serious than if I would have had to move to St. Lukes. I had to trade in my husband, family, work, social, church and material past or my son would never have turned his diagnosis around.

My son is in the SPICE program in Syracuse getting ABA and it is working. We are doing it. We have chosen all of the correct battles and are winning the war on ASD. He is in a renowned ABA program along with numerous other therapeutic classes everyday in school.

I have gone from scared and ignorant, to being the proud mommy of a son with ASD. He’s in GREAT company and I cannot wait to see what his niche will be!
This is one of my other favorite people of all time…yup, he’s in the Autism Club too!

SHARE+CARE=AWARE!

               Blessings.

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AUTISM. Gastrointestinal Disorders NOT a symptom.

AUTISM. Gastointestinal Disorders on the rise in ALL children. NOT a symptom of Autism.

The International Foundation for Functional Gastrointestinal Disorders, IFFGD states that Gastrointestinal Disorders, (GD), are common in ALL children. Therefore, linking such a symptom as GD to be a common denominator for children with Autism is incorrect.

Autistic children are more susceptible to ALL types of disorders and diseases. Thus, any diet related to a ‘cure’ specifically of Autism has not been proven. Most have been completely disproven.

The numerous, all over the board studies regarding children with Autistic Disorders, (AD) and links to GD, Gastrointestinal Disorders show results ranging from 20-75 percent. That’s a HUGE difference. Highly controlled and accredited research is not conclusive in showing GD to be a symptom of Autism, rather a condition which has risen in all children. A well balanced diet in children is essential to growth, period.

Wikipedia reports:

Unusual eating behavior occurs in about three-quarters of children with ASD, to the extent that it was formerly a diagnostic indicator. Selectivity is the most common problem, although eating rituals and food refusal also occur;[28] this does not appear to result in malnutrition. Although some children with autism also have gastrointestinal (GI) symptoms, there is a lack of published rigorous data to support the theory that autistic children have more or different GI symptoms than usual;[43] studies report conflicting results, and the relationship between GI problems and ASD is unclear.[44]

Since the ‘picky eating’, or Gustatory Disorder and ‘starch junky’ tendencies are common place for Autistic children, it is more likely that their GD is caused from a poorly balanced diet.

We have got to stop reaching at straws and connecting disorders to Autism which percentage wise are equally applicable to ALL children.  We are confusing the issues and worst yet, the parents and caregivers.

If my child had diarrhea, he would not want to be social, play games, make eye contact or speak much, etc… Therefore, he would appear MORE Autistic. When his symptoms were relieved, he would appear LESS Autistic. There are thousands of conditions which can have parallel symptoms of Autism.

I would NEVER, however, use this type of a study to say that Kaopectate is a cure for Autism.

We have got to stop reaching for straws.

SHARE+CARE=AWARE

                                                    -C.A. Curie

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