AUTISM. Negligence, American Idol, The Beatles & JT Music & YOU.

AUTISM. Negligence, American Idol Hope and YOU!

The video below of Kaleb is heartbreaking! Although they titled it Autism Battle, this is not my work. However, this story  points out what life without appropriate and accomodating therapy for Autistic Spectrum Disorders, ASD, can be like. The lack of resources offered to this family ay the appropriate ages was not fair to Kaleb or his family.

They didn’t know.

42 states are either NOT providing or only minimally providing accommodating appropriate services for children/persons with Autism, ASD.

Applied Behavior Analysis, ABA,  MUST be given to children at ages 3 and 4! It can take 15 years to do what one year of therapy could have done at the age of 3!
IF my ex-husband, kids and I had not recognized my son’s early ‘words’ and attempts at speech, he would have lost confidence and never spoken too!

“ee-aw” meant “all done”. We began to use his words so that he would understand our acceptance and TRUST us enough to try our language.
It’s an age old common sense approach that works…but you need to know what you’re doing and cannot miss the first few fragile opportunities. If you were in Russia and didn’t know the language…had NO resources…would you ramble on in English if no one understood you? Imagine now finally meeting someone bi-lingual in English/Russian would feel. Relief and hope at last! You would begin to learn and speak their language. This is a ‘bridge.’

40% of all children with Autism will never speak because parents/ caregivers do not know what to do. These kids should be in school at by 2! Screening methods are horrible, doctors do not know the signs of Autism and accommodations are minimal or nonexistent.
There is no excuse for this.
If anyone out there is deciding on career, there are AT LEAST 9 HIGH PAYING JOBS for every graduate with an ABA degree!
This mom, these brothers…and the boy himself will never have the life they could have had. This is what needs to be said. His brain can learn EVERYTHING typical kids can learn, but he has to be taught differently. Playing ‘catch up’ with Autism is hard or impossible.
You cannot WAIT. This is why I moved back to New York. There are 8 states providing Early Intervention with ABA. These kids, if untreated, cost taxpayers between 3.7 and 77 million in their lifetimes depending upon their medical, therapeutic and assisted living needs.
Early Intervention with ABA through the schools costs less than .5 million WITH all the other therapies included! Physical therapy, occupational therapy, sensory integration, speech therapy, 1:1 chaperones, Applied Behavior Analysis, etc…
PLEASE see the SPICE program at Elmcrest in Syracuse, NY. Please study your IDEA laws and battle for your kids. Please be your child’s voice until he can speak and his soldier and advocate until he can battle on his own.
I thank God that I did the research I did, had the strength to get into the Court systems and self represent our relocation, and drive a moving truck across the icy country last year to get my son help 3,000 miles away.
You CANNOT wait. You CANNOT depend on anyone but yourself. You CANNOT change the state you are in while your child is missing his opportunity.
70% of a child’s learning and language foundations are DONE by the age of 3!
No, he doesn’t know 70% of what he will know, his WAY of learning, Operating System, will be done. After that it is just data input, memorization, reasoning, etc…
MOVE! Get out! I am foreclosing on a half million dollar, 10 acre horse farm. I am living in poverty on my disability and child support alone. I closed my 3 businesses. I have been eating from food banks and churches. I had to divorce my husband. I GOT HELP FOR MY SON.
I could not go through life as a mortgagee instead of the mother of a functioning, SPEAKING, (though extremely impaired), reading, writing, singing, dancing, making eye contact, functioning son!
I am not alone. 10 families a week are migrating from the 42 states that should all be held on criminal counts of negligence to these families and their kids.
The 8 accommodating states are going broke. Why? Our President has given BILLIONS in stimulus to help BUT 42 states are taking the monies and NOT ACCOMMODATING! They are flying under the radar!
The Medicaid in those states does NOT cover appropriate treatment…even if you can find it!
The schools have nothing accommodating in place but they take the money.
IF these funds went solely to New York and the other 7 states…we would have TONS of money, no budget cuts in this area, no waiting lists and NO unnecessary tax payer burdens…and the kids and families would be so happy.
My son also did not want to be touched. he would RUN from you. He hated socks. This is called Tactile/ Sensory Dysfunction. A few months of technique at HOME cured this.
He now LOVES to hug, kiss, cuddle, tickle and be tickled. Thank God we can hug him.
When I started studying after diagnosis, this was the FIRST thing I treated. It almost cannot be done later because of your strength and the grown size of your child.
Are we really going to stay quiet?
The parents/ caregivers need to focus on their kids and not worry about lawmakers…those of us who have time can proactively share videos, share blogs, do whatever you can to raise Autism Awareness.

Globally, Autism is 1 in 68 with LESS than half of all persons screened/ diagnosed. This presents a probable 1 in 30 right now and it is growing. http://autismbattle.com/signs-of-autism-in-children/
In 1980, Autism was diagnosed at a rare 1 in 10,000.
It’s NOT the vaccines…those aren’t even available in many areas where Autism is equally on the rise.
Vaccines trigger Autism to show its face so it can be treated at the appropriate ages.
Daryl Hannah, Tom Hanks, Dr. Temple Grandin, Bill Gates, Dan Aykroyd, Jason McElwain, James Durbin, Elvis Presley, Wolfgang Mozart, JAMES TAYLOR…the list is impressive and…They all have Autism!

For a longer list of famous persons with ASD and more information:

http://autismbattle.com/darryl-hannah-tom-hanks-famous-people-with-autism/ 

Please JOIN autismbattle on facebook…http://www.facebook.com/home.php#!/home.php?sk=group_147899615269293&ap=1

Please share videos and links of CORRECT information so there won’t be any more people slipping through the cracks It’s not fair!

Kids, go to college to help these neighbors, loved ones…remarkable people by getting your degree as a Board certified Applied Behavior Analyst. This treatment has been researched and embraced as the correct treatment of all Autistic Spectrum Disorders, ASD, by the Board of Pediatrics for over 10 years.The research is DONE and being ignored…why?
The general population does NOT donate nearly as much AFTER there is a ‘cure.’ When is the last time you gave to AIDS? Autism is a HUGE money making machine of bad DVDs, books, political campaign platforms, false studies and non effective costly treatments, diets…etc…which are misleading and downright deceitful…and they know it!
Where are all the people with Autism EMPLOYED by the ‘Autism organizations?’ You won’t find them.
This is wrong.
Watch the video of Kaleb. His mom knew there was something wrong early enough to have helped her child. She didn’t have the information or resources. This same boy here in New York or 7 other states would be going to school in inclusion classes right next to our kids and grandkids.

Please tune into http://www.autismbattle.com weekly.I will constantly update with techniiques, therapies, stories, tools and information to help.

I ask for everyone to NOT take my word face value…do your own research…be mindful of the dates, sources and motives.  Most importantly, are they making money by making you buy anything to get answers? I am not. Not a dime. These hours writing, posting, sharing and researching are yours free. I only ask that you please share too.
I can learn from your research. Knowledge and experiences as well.

What can we do? Our communities have accommodations for the hearing, sight, physically, etc…impaired,  but nothing is in place for these at least 87 MILLION people with ASD…

The number one cause of death with persons with ASD is wandering/ elements. Know the affected children in the neighborhood and look out for them. Parents, put logos and identifying symbols of Autism on your children’s clothing so that neighbors, emergency workers, retail associates and civil workers CAN keep a caring eye out for them.  Go to your neighbors and tell them your child has Autism. Have pictures and identifying information printed and hand it out. These kids look and sometimes act just like typical kids.

How can everyone help if they don’t know? This is no time for pride or denial. Don’t ever let it be too late. If you know a parent/ caregiver with an Autistic child, ask how you can help. I have personally gone 5 years without respite and the waiting lists go on for years. If you are in touch with lawmakers or are one, help bring in appropriate therapies and accommodating resources.

The number two cause of death with persons affected with Autistic Spectrum Disorders is drowning. Everyday an Autistic person drowns. Cover pools, know the affected children in the neighborhood and look out for them, Again, ask your lawmakers to bring in appropriate therapies, funding for existing or needed agencies and accommodating resources. Put gates around community lakes, swimming areas and even fountains.

http://www.autismkey.com/sink-or-swim-avoiding-an-autism-related-drowning/

Build restaurants with ‘picky eater’ menus and therapist supervised play areas where the children can see their parents and there are no play dangers…children with ASD number three cause of death is falling from heights. Keep play areas for them without tall structures please.

The face of ASD has been in our communities and gone undiagnosed. They may have seemed eccentric, unique, shy, extremely intelligent, talented or obviously affected.
The current favorite on American Idol, James Durbin is Autistic.
Iam posting a link to an amazing video that was NOT aired…a treat for all my friends who are Beatles fans…James Durbin slays the greatest version of “While My Guitar Gently Weeps”, I have ever heard. WOW. (I wish he would do the vocal part from Pink Floyd between TIME and HOME AGAIN)…:
src=

You will see that we have to help.
We can all be a part of this.
Remember this…the answers to ‘cures’ do not cost money. You don’t have to buy DVDs or books to get something like this. Websites like mine were nearly impossible to find in 2008 when my son was finally diagnosed. That’s why I’m doing this. Somewhere out there someone is reading this that need to know this or will join in making changes.
I am so grateful to have a computer and a laptop.  I am lucky to have the energy to stay up everynight doing my research and writing.  I am fortunate to have this ability to translate what I’ve learned and am learning into the therapies that are turning Autism, ASD, around in my amazing son.

I only wish I didn’t have to be so far from my older kids and my son’s daddy, (my ex-husband). These were the hardest sacrifices of all…for ALL of us.
I never knew we really could change the world. It really did start with the girl in the mirror just as Nay Nay said it would . We can all help make changes. At the very least, we can spread Autism Awareness.

‘ …I’ll be there to protect you, with an unselfish love that protects you. Whenever you need me, I’ll Be There…” -MJ

I feel like a bad Sally Struthers commercial at 2 o’clock in the morning pleading like this…but that’s OK too. This is no time for pride, shame, guilt or blame. This is time to share proactively however I can.
In the sense of functionality…in 85-90% of cases, Autism is ‘CURABLE’. These uniquely wonderful people may need accommodations, support, protection and some assistance…but they don’t have to be the stereo typical wall staring, head banging, speechless kids that my son not long afo was.
Thank you everyone.

I ask for everyone to NOT take my word face value…do your own research…be mindful of the dates, sources and motives.  Most importantly, are they making money by making you buy anything to get answers? I am not. Not a dime. These hours writing, posting, sharing and researching are yours free. I only ask that you please share too.
I can learn from your research. Knowledge and experiences as well.

What can we do? Our communities have accommodations for the hearing, sight, physically, etc…impaired,  but nothing is in place for these at least 87 MILLION people with ASD…

The number one cause of death with persons with ASD is wandering/ elements. Know the affected children in the neighborhood and look out for them. Parents, put logos and identifying symbols of Autism on your children’s clothing so that neighbors, emergency workers, retail associates and civil workers CAN keep a caring eye out for them.  Go to your neighbors and tell them your child has Autism. Have pictures and identifying information printed and hand it out. These kids look and sometimes act just like typical kids. How can everyone help if they don’t know? This is no time for pride or denial. Don’t ever let it be too late. If you know a parent/ caregiver with an Autistic child, ask how you can help. I have personally gone 5 years without respite and the waiting lists go on for years. If you are in touch with lawmakers or are one, help bring in appropriate therapies and accommodating resources.

The number two cause of death with persons affected with Autistic Spectrum Disorders is drowning. Everyday an Autistic person drowns. Cover pools, know the affected children in the neighborhood and look out for them, Again, ask your lawmakers to bring in appropriate therapies, funding for existing or needed agencies and accommodating resources. Put gates around community lakes, swimming areas and even fountains. Build restaurants with ‘picky eater’ menus and therapist supervised play areas where the children can see their parents and there are no play dangers…children with ASD number three cause of death is falling from heights. Keep play areas for them without tall structures please.

A local store owner in Syracuse, New York, Mr.Tai Shaw has offered to put free Autism Ribbon logos on one piece of clothing for all children in CNY with ASD for FREE. This is a tremendously generous and thoughtful offer and shows that we all can think of some way to contribute!
The face of ASD has been in our communities and gone undiagnosed. They may have seemed eccentric, unique, shy, extremely intelligent, talented or obviously affected.

This is a tragedy. This family is just starting appropriate treatments with ABA on their son, Kaleb who is far beyong the required age of 3-4 when this exact same therapy would have had maximum impact.

I moved 3,000 miles to get to the SPICE program in Syracuse, NY. I saw getting help for my son with Autism no less serious than if I would have had to move to St. Lukes. I had to trade in my husband, family, work, social, church and material past or my son would never have turned his diagnosis around.

My son is in the SPICE program in Syracuse getting ABA and it is working. We are doing it. We have chosen all of the correct battles and are winning the war on ASD. He is in a renowned ABA program along with numerous other therapeutic classes everyday in school.

I have gone from scared and ignorant, to being the proud mommy of a son with ASD. He’s in GREAT company and I cannot wait to see what his niche will be!
This is one of my other favorite people of all time…yup, he’s in the Autism Club too!

SHARE+CARE=AWARE!

               Blessings.

About Charlie 44 Articles
Former Circus/ Vegas performer. Changes life to pursue facts and help about Autism after her youngest son was diagnosed as severe. Devotes life to helping all famiiles battle Autism.

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