Who I am

A retro Glam woman with a ‘perfume’ boy’s nick name…who always manages to think ‘outside the box’ or  OFF THE WALL, (thanks MJ), when it comes to my approach to every facet of Autism…but it’s working…unprecedented with no gimmicks, tricks, bad diets or medications…it’s all hard work…but you’d never know it because it is now just a way of living our lives! So, a little about me? Well there’s a LOT. Show business background, raised by a tyrant mother, absent father, law school, travel, single mother of 4, Who’s Who humanitarian, the US first Female Circus Ringmaster, Bonsai Tree artist, multi-lingual, singer, songwriter, writer, thesbian, advcocate, grand mother, fashionista, interior designer, Disney channel addict, Christian, hails from Upstate NY, prom queen, graduate of Ringling Brothers Barnum and Bailey College, former high wire artist and leopard trainer, art collector, Christian Audigier fan, keyboard player, former Las Vegas spokes model and Master of Ceremonies, dealer and entertainer, cancer survivor, broken neck survivor, broken heart survivor, love to cook and sew,  wardrobe creator for Caesar’s Palace, U2 and others, love Pirates and riding on the back of a motorcycle, was production writer and designer,  love 70’s and 80’s music…and 60’s..and still perform it, Davy Jones and Johnny Depp Sparrow fan, Carole Burnett and Lucille Ball fan, extremely proud mother of three older kids…and the remarkable younger one…still in awe that I’m already a grandmother to two incredibly handsome and adorable little boys and one angel blessed upon us little girl…finally!…still in mourning over the passing of an older brother…and the passing of the Great Michael Jackson…passionate, brilliant, tenacious, patient…(except when it’s needed services for the kids), eccentric, energetic, dedicated, determined, sober, courageous, honest, sensitive and vulnerable…and whose life is now directed, defined, enriched, blessed, ignited, enriched and strengthened by the diagnosis of my 4 year old…Autistic Disorders, primary Severe Speech Dysfunction/ Delay/ Apraxia, Tactile/ Sensory Dysfunction, Obsessive Compulsive Disorder, Sleep Disturbance, Gustatory (picky eater) Disorder… most recently, Velum Dysfunction and finally a very rare clotting factor disorder called Von Willebrands…I personally wish God could limit a child’s disorders to only one…but then I wouldn’t have the most remarkable journey of my life.

                                                                                                

I have been keeping a journal step by step through this whole Autism process…and have well over 3,000 hours of study and research in…and am part of a winning team where my 4 year old absolutely leads the way for us. Maybe I can publish my journals as a step by step guide for those just starting their journey’s…(Oprah?). I have so much to offer, research based and documentably proven…whether it’s products, techniques, direction, advice…this website is dedicated to Autism living, families, caregivers, loved ones…and anyone who wants to learn. Social Autism Awareness will allow these terrified homebound parents to bring these kids out into our communities without fear of an ignorant call to Child Protection Services over a kid who’s just having a ‘melt down’ from over stimulation..not parental abuse! I remember all the myths about HIV and how society was so ignorant and cruel…and now the Autism correct information needs to be told as well..and FAST!

I will carry this website until my little one takes it over…as I am his voice until he is fully verbal…and completely understood.I am not at all bragging about some parts of my life, I needed you to know how diversified my background is which is believed to be why my rather unique but FUN..or ‘Mary Poppins’ technique and approach has led to a complete turn around in my son’s Autism direction.

I maintain that there is no mild or severe Autism…only mild and severe therapies…and we DO have options! A huge, most sincere thanks to my first OT ‘Beth’, the play therapist guru, ‘Dorrie’ and my idol Phd ABA Board Certified ‘Dr.Leah’ for their brilliance, love, patience, encouragement, corections, guidance and love in the key roles they are playing and/ or have played.

Hang in there with me…I will try to catch you up, advise, reccommend products and techniques, teach and most importantly…LEARN! I will not be accepting open comments to avoid this becoming a debate site. This is my son’s and my journey. However, I will copy any e-mails and stories with content I feel is appropriate for this site. This is a respectful site. There are wonderful stories..but there are MORE harsh ones…we are way behind in this war and barely even limping into a WORKING solution for all Autistic persons and the huge network embracing them.

You will hear a LOT about ABA, Applied Behavior Analysis…if there is a single description of the cure, which has already been reccommended by the American Board of Pediatrics for over 10 years…which states that this therapy is needed 40 hours a week for 2 years…and all before the age of 4…but many of you are just hearing about this for the first time?!

I would never change who I am or what I am doing for anyone or anything. I finally know why I am here and everything in my life makes sense…it has brought me to a single moment of clarity…I was groomed to fight this AUTISM BATTLE!

For me? “I’ve seen all good people turn their heads each day so satisfied I’m on my way”-YES

For the baby? “I’ll be there to protect you, with an unselfish love that respects you, whenever you need me, I’ll Be There”-Michael Jackson

Amongst numerous other skills, my boy now reads and writes…his favorite thing to pen? “Baby and Mommy forever I love you.  Hug. Kiss” I couldn’t have said it better!

I have recently begun, and am honored and thrilled to write for AutismKey.com. There is such joy in my heart to know that what we are learning can be shared in a greater venue. Thank you Gary, the founder of AutismKey for bringing me on board.

I will be posting my writings there first under the pen name of C. A. Curie.

 Prayers are heard and Dreams continue to come true.

All Blessings!

Thank you Gary. I look forward to sharing my experiences through your AutismKey.com…(then back here at home on Autismbattle.com). There was no resource like AutismKey when our kids were diagnosed. Thank you for your work, corrections, input, guidance and for allowing me to realize this life’s dream.  AutismKey is an informative, hands on, respected, grass roots, relevant and purely motivated  ‘gospel’ of Autism.

I will be writing as C. A. Curie.

3 Comments

  1. thank for the insite i am thankful to have known you and wish you and dezi well. I wish a had the answers but i cant rember the???????????have the time I do know the road is as long as the journey for which you are on and the hope for tomorrow maybe secounds away love of a mother grow stronger each day at each morning i give thanks for this life and prey for you both to have a happier day at nite i say thank you to god for good or bad day I think of your life and how hard it can be but the thing that is important is your son is getting better threw the love of his mother and the stengh to help others along the way nice JOB CINDY love kyle

  2. Hi,
    I would like to draw attention to our new app, called iPicto: for iPhone, iPod Touch

    and iPad.
    This app is designed to guide people with a (mental) disability, with or without
    dementia/alzheimer, asperger, autism and / or a disorder in communication.

    This new app iPicto is also a very good tool in learning a way of communication,

    for example speech difficulties.

    I refer you for further information, visit the App Store.

    See for it: http://itunes.apple.com/us/app/ipicto/id423225072?mt=8&ls=1

    Thank you for attention,

    Sincerely,

    Erwin van den Hout
    The Netherlands

  3. Hi Andrew!I know when Isy reached soohcl age Liz did a huge amount of research on what soohcl to place her, we did have a choice! The idea of this directory is to try and make that process a bit simpler by tying to have the choices available in the one location. From there you can get info and contacts to take it further and apply to have your child placed in the soohcl of your choice. Obviously there is a process to follow and DECS does have a say.Cheers

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